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Dystonia
dystonia Information
Can amphetamine usage cause cervical dystonia?
affects of ephedrine or amphetamines eg spasmodic torticollis
Do i have spasmodic wryneck, torticollis, icd, or cervical dystonia?
im 13 and when my neck tilts to look at something its when im very nervous or anxious..usually when someone is staring at me and they wont stop. or when ive been looking at the board for hours.
Has anyone ever heard of dystonia in the back. If so, what is the treatment?
CP, ataxia, dystonia difference?
What is the difference between mild cerebral palsy hemiplegia hemiparesis , with ataxia or dystonia.
Has anyone had success in treating cervical dystonia?
I have suffered for years, but finally diagnosed about a year ago. Since then I have undergone several rounds of botox injections, nerve blocks, and numerous narcotic pain meds. Kind of scary when Lortab combined with valium does nothing to relieve the pain and spasms. The most recent nerve block has helped some, but wares off quickly. I also have tried p. therapy...made it worse. Now have a TENs device for home use, sometimes makes it worse as well as a neck traction device. I am now contemplating deep brain stimulation. Has anyone had this done with great success? Any and all stories are greatly appreciated. Love to hear from people that actually understand the battle.
Anyone suffering from neck dystonia or torticollis?
Receiving botulin injections which dont work, wondered if anyone out there is suffering from same and Im looking for other remedies which may help.
Unexplained dysarthria and dystonia. Help, please!?
Hi, I posted this in the other section, too, I was just thinking maybe it would get more notice on this page? This is a long one but I'll try and shorten it. I live in a country town where doctors are scarce and rarely speak english and I'm beginning to wander if they're doing all the right things. Long story in bullet point. Honeymoon in Thailand Feb March for 2 weeks. Ate in safe and recommended places only but for one night we ate in a little thai kitchen but hubby at the same food as me Following day 1.5weeks into holiday I'm lightheaded, stiff neck, nauseas, and I stay inside. About 2pm I begin to feel my body twitch and my tongue feels heavy. By 230pm I have little control over the jerking in my arms and I can't talk at all dysarthria Rush to hospital. CT and chest scan clear. Dr suggests an EEG but can't do it before we fly out. Land in Australia and get rushed to hospital hours after landing as symptoms become worse. I lose strength in my left hand and foot but regain it by morning. No MRI machine, but bloods are taken and I'm sent home.It's now a week since then and they're having problems getting me to the city for a scan public health system . My symptoms get worse, then suddenly better and back again. The past two days the stiffness in my neck is back, I've had huge bouts of nausea, have been vomiting, and worse still today I lost the strength in my legs and collapsed. An hour later I was fine. In all of this I have seen one neuro who said it was stress. I have well had nothing to be stressed over. In fact, life hadn't been so good. Recently got all my blood results back. I'm above normal in protien liver function test and copper. Also my CRP levels were noted as high double the upper scale of average . Each elevation has notes such as 'high level noted, could be from trauma, infection or malignancy' etc. but the dr didn't say anything was wrong, nor has he ordered more tests to investigate further.It also says the blood tests should be redone 2 weeks after the first symptoms to totally rule out any tropical diseases etc. That two week date was yesterday. I know it's impossible to diagnose someone online and I'm not asking for a diagnoses, but I'm quite confused and would love to know if you or anyone you know has had similar symptoms? Migraines, sensitivity to light, exhaustion, nausea, dystonia, dysarthria, weakness, stiff nec. Would love some insight to what this could be and what I should ask the doctor for. It seems I will have to demand that they investigate this properly rather than sit by and wait for them to get their act together.If you read all of this thank you and thank you in advance for your theories answers.
Is eptoin good for general dystonia?
Has anyone heard of or has dystonia?
I was dygnosed 10 years ago i have tremors in hands,jerks in arms i have writers cramp in wrists and stiffness
What is the best medicine for dystonia of the feet and legs?
Doctors please help me....I have dystonia/cervical tortocollis.?
Will I ever get better? Am I going to look deformed forever? I can't keep my head down my head just goes up to the right. please tell me if there is any chance i will get better? my doctor has no idea what is causing it or how to make me better. i hate my life right now please help me understand this.
Is masterbation bad for focal dystonia patients?
Will the Dystonia ever go away?
I had been taking Dexedrine Spansules, 15mg each, 90mg daily. Invega 6mg daily, and Halcion .5 mg nightly. I've had three separate occasions of what my psychiatrist told me is dystonia. All of them ended up with me in the hospital shouting and crying. They started when I was 17, I'm 18 now.It first started with me talking to my mom, I felt as if I was chewing on my tongue, my words werent coming out clearly. From there my neck bent all the way to the left and was being pushed farther than it should ever go. My wrist on my left hand side curled up and was twisting also. I had no control, my vision was all messed up, my eyes were looking up and couldn't look straight. I was sweating profusely, my eyes were very dilated. My jaw was also out of place and was going left like my neck. Finally I got to the hospital and what not, the pain was unbearable, after 10 min of waiting in a hospital bed it stopped for a minute or so, then it changed sides, switching to my right hand side. From there I was barely able to breathe and started to go into a seizure. The same thing has happened 2 other times also. I now take Cogentin, I haven't had any since, will I always have to take it or will I have a chance of it happening again if I stop the Cogentin?
People with Dystonia?
I was wondering if there was anyone on here with dystonia? Im 16 and have had it since i was 8, I have it in the neck and right arm. I absolutely hate it, i take clonidine for it which helps massively and am currently undergoing tests to see if im compatible for deep brain stimulation. If there is anyone on here that has it how do you deal with relationships? And going to work etc. I find my life is worked around it which causes me alot of anxiety. Also have you had DBS, how was it and is it very effective. Thanks Ollie.
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